Well, Nathaniel had his appointment with the neurologist and it went alright. It was decided to put him back on the medicine for the next 2 months. We will then go back to see the doctor and they will put him on the EEG machine to see if there is any seizure activity going on. The medicine will keep the seizures from happening, but it will not stop them from being possible. Hmmm….the best way to describe it is this: let’s say that seizures are caused by electrical pulses in the brain. And while the medicine won’t stop the electrical pulses from begining, it will stop them from getting to the point of causing seizures. So, even though he will be on the medicine, the EEG machine will pick the very begining of “would be” seizures.
I’m disappointed that he will be on it, but I’m not surprised. I was hoping that all would fine by now. The doctor said that she was 60/40 on whether or not to put him on the medicine. But we decided to do so anyway because he will be on a very low dose and the side effects on him, if these really are seizures, far out weight the side effects of the medicine.
Another thing she mentioned is that even though he got his last does of the medicine on the 9th, it wouldn’t have been until the 18th or 19th that is was completely out of his system. And Saturday, the 19th, is when I first saw these movements. Granted, I haven’t seen any since early Monday morning, but I wonder if there is a connection. It is good that I haven’t seen anything since Monday, but then again, I haven’t been glued to his side either. For all I know, he could have had them with movements and I wasn’t looking.